I recently got an email from a woman named Gretchen Peters. She saw my "10 things" post and emailed me to learn more about my sister, Lauren (or Lolly, as I like to call her). Gretchen has a 5-year-old son, Simon, who also has Pallister-Killian Syndrome. She has helped put together a non-profit organization for families of PKS children, called PKS Kids. What an incredible resource the internet can be!
this website. And if any of you have family or friends affected by any mental handicap I would love to hear your story!